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Ovarian Cancer Treatment Resources, Internet Support Groups, Online Resources February 18, 2012

Posted by patoconnor in cancer, gynecological cancer, ovarian cancer, tubal cancer, Uncategorized, uterine cancer, vaginal cancer.
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Ovarian Cancer Treatment Resources

Inclusion in the list does not constitute an endorsement of any individual, provider, hospital or medical facility

Dana-Farber Cancer Institute—Ovarian Cancer
Information about treatment, clinical trials, screening, and prevention.

Learn more about nuclear medicine and the use of molecular imaging for cancer patients.

Get Palliative Care
Provides information about palliative care, which focuses on relieving pain, stress, and other symptoms of serious illness.

M.D. Anderson Cancer Center
Provides information about integrated programs in cancer treatment, clinical trials, education programs and cancer prevention.

Memorial Sloan-Kettering Cancer Center
Provides information about treatment for ovarian cancer in addition to research and support for cancer patients and researchers.

National Comprehensive Cancer Network
Clinical recommendations and information about events and resources.

National Lymphedema Network
Education and guidance for lymphedema patients, health care professionals and the general public on primary and secondary lymphedema.

Radiation Therapy Answers
Information about radiation therapy from physician members of the American Society for Therapeutic Radiology and Oncology. Help finding a radiation oncologist.

RxList—The Internet Drug Index
Provides information about prescription drugs to consumers and health care professionals.

Understanding the Approval Process for New Cancer Treatments
Information on the role of the FDA in the approval process for new cancer treatments.

Internet support groups (listservs or chat rooms) are free email or chat room discussions on specific topics of interest. Email subscribers receive copies of emails sent by any members of the group to the listserv. Some active groups generate dozens of messages a day. If you subscribe to the “digest” mode, you will receive one email containing all of the messages posted that day. Email discussion groups are an excellent way to connect with people in similar circumstances.

Chat rooms can be either “live” chats or bulletin board-type chats. A live chat is similar to walking into a room where a discussion is already taking place except you will be typing your messages. In a bulletin board-type chat room, a participant may post a message, and others will usually respond right below that message. With any of these support groups, you may elect to participate or just observe by reading the messages of others and the responses that their messages generate.

 ACOR (Association of Cancer Online Resources) hosts dozens of cancer email discussion groups. Discussion groups hosted by ACOR include OVARIAN–an unmoderated discussion list with over 1,000 subscribers. ACOR also has discussion groups on CANCER, CANCER-FATIGUE, CANCER-PAIN, CANCER-PARENTS, and dozens of others. ACOR offers a convenient automatic subscription feature for discussion mailing lists at http://www.acor.org. Click on mailing lists (on the left nav bar) then click on the group you are interested in joining.

The National Ovarian Cancer Coalition (NOCC) hosts a chat area for women with ovarian cancer. To participate, go to www.ovarian.org/ and click on “Chat” listed under “Support” on the left nav bar. They have a feature that allows participants to schedule chat events on particular topics. The NOCC also hosts multiple listservs on various topics including a resource list, awareness list, caregiver’s list, humor list, and others. To subscribe, click on “Mailing lists” under “Support” on the left nav bar.

OncoLink, at the University of Pennsylvania, has an online FAQ (document answering frequently asked questions) about cancer listservs athttp://oncolink.org/resources/faq/listserv.html. If you would like to learn a bit more about them and get answers to some specific questions, this is a good place to start.

Online Resources

  • CancerGuide. 
    Steve Dunn, a cancer survivor, clearly explains cancer types and staging, chemotherapy, pathology reports, and the pros and cons of researching your own cancer. He recommends books, includes inspirational patient stories, and has links to many of the best cancer sites on the Web. CancerNet
  • http://cancernet.nci.nih.gov/
    An NCI sponsored comprehensive source of cancer information including types of cancer, treatment options, clinical trials, genetics, coping, support, resources, and cancer literature. CancerNet is one of the most comprehensive information sources for cancer patients on the Net. CanSearch: Online Guide to Cancer Resources
  • www.cansearch.org/canserch/canserch.htm
    Service of the National Coalition for Cancer Survivorship that leads you step-by-step through an online search. 
  • Clinical Trials
    A consumer-friendly database sponsored by the National Institutes of Health that provides information on more than 4,000 federal and private medical studies involving patients at more than 47,000 locations nationwide. Conversations
  • www.ovarian-news.com/
    International newsletter for women fighting ovarian cancer. Gilda Radner Familial Ovarian Cancer Registry
  • http://rpci.med.buffalo.edu/departments/gynonc/grwp.html
    Roswell Park Cancer Institute hosts an international registry of families with two or more members with ovarian cancer. They promote ovarian cancer research and offer a help line, education, and peer support for women with a high risk of ovarian cancer. OncoLink
  • www.oncolink.org/specialty/gyn_onc/ovarian/
    University of Pennsylvania cancer specialists founded OncoLink in 1994 to help cancer patients, families, healthcare professionals, and the general public get accurate cancer-related information at no charge. It contains information on ovarian cancer, causes, treatment options, hormones, symptom management, causes, psychosocial support and personal experiences. PubMed
  • www.ncbi.nlm.nih.gov/PubMed
    The National Library of Medicine’s free search service provides access to the 9 million citations in MEDLINE (with links to participating on-line journals) and other related databases. Also includes FAQs, news, and clinical alerts. Ovarian Cancer Research Notebook
  • www.slip.net/~mcdavis/ovarian.html
    The OCRN is a comprehensive list of articles on treatment for ovarian cancer that contains approximately 3,000 documents. It is maintained and upgraded by the National Ovarian Cancer Association of Toronto, Canada.The Women’s Cancer Networkwww.wcn.org
  • Site developed by the Society of Gynecologic Oncologists to help prevent, detect, and conquer cancer in women. It has cancer information, a bookstore, survivor stories, links to other web sites, and a helpful find-a-doc feature.

courtesy: Ocononurse.com