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Ovarian Cancer Resources Education, Genetics Information, Financial and Legal Support February 18, 2012

Posted by patoconnor in cancer, gynecological cancer, ovarian cancer, tubal cancer, Uncategorized, uterine cancer, vaginal cancer.
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Cancer Resources Education, Genetics Information, Financial and Legal Support:

A Single Light
Searchable database of cancer-related Web sites.

American Cancer Society
Information on cancer, research, advocacy, and community programs and services.

American Pain Foundation
Online toolkit for assessing pain as a part of a treatment plan.

Association of Cancer Online Resources
Collection of online communities that provide information for cancer survivors.

Comprehensive listing of credible Web sites for those affected by cancer.

Cancer information from the American Society of Clinical Oncology.  Offers podcasts, feature articles, and links to current news.

Educational programming and information for health care professionals, cancer patients, and their family members.

Offers the latest news, research, and information on prevention, detection, and treatment of ovarian cancer, as well as interactive decision support tools.

Centers for Disease Control and Prevention
CDC, in collaboration with the Department of Health and Human Services’ Office on Women’s Health, established the Inside Knowledge: Get the Facts About Gynecologic Cancer campaign to raise awareness of the five main types of gynecologic cancer: cervical, ovarian, uterine, vaginal, and vulvar.

Foundation for Women’s Cancer
Brochures and other educational material for women who have or who are at risk of developing a gynecologic cancer. For a complete list of Foundation survivor courses click here.

Gilda Radner Familial Ovarian Cancer Registry
An international registry of families with two or more relatives with ovarian cancer.  Offers a helpline, education, cancer information and peer support for women with a high risk of ovarian cancer.

Health Finder
Government and nonprofit health and human services information.  Links to carefully selected information and Web sites from over 1,500 health-related organizations.

Johns Hopkins Pathology’s Ovarian Cancer Web
Provides information, personal stories, and an online community.  Gives specific information about each individual ovarian tumor type.

Living with Cancer
Information about how to manage common problems faced by those living with cancer.

Multinational Association of Supportive Cancer Care

National Cancer Institute
Information about cancer topics, genetics, clinical trials, research, and statistics.  Helpful links as well as online assistance with Nation Cancer Institute’s information and cancer-related resources.

National Coalition for Cancer Survivorship
Offers audio Cancer Survival Toolbox and information about finding resources online.

National LGBT Cancer Network
Information for survivors and health care providers about increased cancer risks, decreased screening rates, and unique survivability issues of lesbian, gay, bisexual and trans gender cancer survivors and those at risk.

National Ovarian Cancer Coalition (NOCC)
Offers information about ovarian cancer as well as a helpline (1-888-682-7426) for support.

Cancer-related information for cancer patients, families, health care professionals, and the general public.

Ovarian Cancer Canada
Provides support, education, and research as well as a toll free support line.

The University of Texas MD Anderson Cancer Center: The Anderson Network
Online information and downloadable PDFs about prevention, diagnosis, treatment, and support.

Women’s Cancer Network – Ovarian Cancer
An interactive Web site about gynecologic cancer, helping women to understand more about the disease, learn about treatment options, and gain access to new or experimental therapies.

Genetics Support

Financial and Legal Support

Cancer Care
Professional support services to people with cancer, caregivers, children, loved ones, and the bereaved.  Offers help finding counseling and financial support.

Links to financial and legal resources and government agencies.

Clinical Trials and Insurance Coverage: A Resource Guide
Information on insurance coverage for clinical trials from the National Cancer Institute.

Corporate Angel Network
Help arranging free air transportation for cancer patients traveling to treatment using empty seats on corporate jets.

Bridge of Blessings
Information and application for women with cancer in need of financial assistance.

Family and Medical Leave Act Advisor
Provides information on the Family and Medical Leave Act.  Lists questions to help determine the rights of employees and employers.

Federal Trade Commissioner
Information about a Federal Trade Commissioner brochure issued to advise the terminally ill who are considering selling their life insurance policies in order to pay bills.

Look Good…Feel Better
Help from a free, non-medical, brand-neutral, national public service program supported by corporate donors to offset appearance-related changes from cancer treatment.

Official government information about Medicaid and Medicare.

Official government information for people with Medicare.

Mercy Medical Airlift
Information about this nonprofit organization dedicated to serving people in situations of compelling human need through the provision of charitable air transportation.

Oncolink—An Introduction to Viatical Settlements
Offers information and resources for the seriously ill who are considering selling their life insurance policy to a viatical settlement company.

Patient Advocate Foundation
An active liaison between patient and insurer, employer and/or creditor.  Information about resolving a patient’s insurance, job retention and/or debt crisis matters through case managers, doctors and attorneys.

Rise Above It
Provides grants and scholarships to young adult survivors and care providers who face financial, emotional, and spiritual challenges.

Team Continuum
Assists with basic needs that ease the financial stress patients and their families face by paying bills (electric, phone, water, gas, etc.), rent, tutoring, small toys, transportation and other incidental needs that arise.

The National Collegiate Cancer Foundation
Provides services and support for young adults diagnosed with cancer.  Offers need-based financial support for young adult survivors pursuing higher education.

courtesy: Ovarian Cancer.org


Expanding the public health research agenda for ovarian cancer. September 17, 2009

Posted by patoconnor in cancer, gynecological cancer, ovarian cancer, tubal cancer, uterine cancer, vaginal cancer.
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Expanding the public health research agenda for ovarian cancer.

J Womens Health (Larchmt). 2009 Sep

Trivers KF, Stewart SL, Peipins L, Rim SH, White MC.

Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, Georgia 30341, USA. ktrivers@cdc.gov

Since the year 2000, the Centers for Disease Control and Prevention (CDC) has undertaken an active public health research agenda in ovarian cancer, focused mainly on research related to earlier recognition of symptoms, methods for earlier diagnosis, and optimization of treatment and end-of-life care. Much of this work was guided by external input from two workshops in 2000 and 2002 with ovarian cancer experts in clinical and epidemiological research, public health leaders from federal and state agencies, and ovarian cancer survivors. In November 2008, the CDC convened a third informal workshop of experts to comment on CDC’s work to date and to help expand the public health research agenda for the future. The purpose of the workshop was to identify and discuss urgent and emerging issues related to ovarian cancer and how public health organizations, and specifically CDC, might address these issues through research. This article provides a summary of some of the issues discussed and potential areas for future research, including genetic, screening, and diagnostic tests for ovarian cancer; ways of improving the quality of care for patients; symptom recognition; public awareness; and other emerging issues related to ovarian cancer.